Change search
Link to record
Permanent link

Direct link
Publications (10 of 35) Show all publications
Melin, J., Möllerberg, M.-L., Svensson, H., Johansson, M., Korsell, N., Karlsson, S., . . . Pendrill, L. (2023). A sustainable organization for measurement quality assurance of category based measurements: Tasked with coordinating and ensuring reliable and comparable measurements of experiences, feelings, behaviours and abilities.
Open this publication in new window or tab >>A sustainable organization for measurement quality assurance of category based measurements: Tasked with coordinating and ensuring reliable and comparable measurements of experiences, feelings, behaviours and abilities
Show others...
2023 (English)Report (Other academic)
Abstract [en]

Why?

Society's need for knowledge about experiences, feelings, behaviours and abilities is increasing. It is important to know how people and society feel or how a product or service is perceived, and to be able to compare how these change over time and between different areas, for example when making decisions about priorities, efforts and effects. In order for measurements of experiences, feelings, behaviours and abilities to be useful and provide reliable data, quality-assured measurement is required for socalled category based measurements1. It is therefore necessary that basic measurement principles are applied, which is often not the case today in this field. For the physical quantities (length, mass, time, etc.) there has long been an internationally established measurement quality infrastructure. In Sweden, it is mainly RISE as the National Metrological Institute which, through its national measurement sites, is responsible for ensuring access to quality-assured and traceable measurements for society. However, the corresponding measurement quality infrastructure is so far missing for category based measurements.

What?

RISE has been working for several years to develop methodology and working methods for measurement quality assurance of experiences, feelings, behaviours and abilities. Through dialogue over several years with actors at various levels, including in health care and academia, it has emerged that there is a great need for support for this development. RISE has therefore produced a first draft of a possible sustainable organization for measurement quality assurance of category based measurements. A national centre for quality assurance of category based measurements would be tasked with coordinating and ensuring reliable and comparable measurements of experiences, feelings, behaviours and abilities. Such infrastructural support must make methodologies available to enable quality assurance for category based measurements. The organization must meet society's need for support by offering services based on internationally accepted metrological principles and scientific methods, as well as adopting a neutral and independent role.

How?

We have humility about the fact that it is a long process to establish an organization for category based measurements and that it needs to happen through a dynamic and iterative development in co-creation with the actors involved. We look forward to continuing to develop ideas and revise the proposal in dialogue in the coming years. It is also important to start a dialogue together with relevant actors about how the implementation of the organization can take place in the future.

Publisher
p. 13
Series
RISE Rapport ; 2023:8
Keywords
Natural Sciences, Naturvetenskap
National Category
Natural Sciences
Identifiers
urn:nbn:se:ri:diva-64024 (URN)978-91-89757-51-6 (ISBN)
Note

Available from: 2023-02-16 Created: 2023-02-16 Last updated: 2023-11-27Bibliographically approved
Karlsson, S., Harris, K. L., Melin, J., Lahne, J., Wolfson, J. & Collier, E. S. (2023). An evaluation and shortening of the Cooking and Food Provisioning Action Scale (CAFPAS) using item response theory. Food Quality and Preference, 108, Article ID 104880.
Open this publication in new window or tab >>An evaluation and shortening of the Cooking and Food Provisioning Action Scale (CAFPAS) using item response theory
Show others...
2023 (English)In: Food Quality and Preference, ISSN 0950-3293, E-ISSN 1873-6343, Vol. 108, article id 104880Article in journal (Refereed) Published
Abstract [en]

The Cooking and Food Provisioning Action Scale (CAFPAS) is a 28-item validated tool for measuring food agency, a latent construct representing an individual's ability to make and achieve food-preparation and -provisioning goals. Here, key measurement parameters (targeting, threshold ordering, item fit, unidimensionality, differential item functioning, local dependency, and person reliability) of the CAFPAS are evaluated using a specific case of item response theory, Rasch analysis, on data from a development sample (N = 1853; 910 from Sweden; 943 from the US). Winsteps (v.5.1.7) is used for this analysis. The similarity of the Swedish version of the CAFPAS to the original is also assessed. Based on an iterative assessment of the measurement properties with different combinations of items in the development sample, ways to shorten the CAFPAS without jeopardizing construct validity or person reliability are examined. After removing items that do not fit the Rasch model, or that appear redundant in relation to other items, an 11-item version (CAFPAS-short) is suggested and tested using further Rasch analysis on both the development sample and an additional US-based validation sample (N = 1457). Scores of cooking confidence and attitudes are then modelled with measures from the CAFPAS and CAFPAS-short using frequentist and Bayesian analysis. Results suggest that the CAFPAS-short performs similarly to the full-length version, and potential future improvements to the CAFPAS are discussed. This study represents a successful application of item response theory to investigate and shorten a psychometric scale, reducing cognitive load on participants in studies using the CAFPAS whilst minimizing loss of data reliability. © 2023 The Author(s)

Place, publisher, year, edition, pages
Elsevier Ltd, 2023
Keywords
Categorical measurement, Cooking ability, Food agency, Item response theory, Psychometrics
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:ri:diva-64425 (URN)10.1016/j.foodqual.2023.104880 (DOI)2-s2.0-85154566017 (Scopus ID)
Note

Correspondence Address: E.S. Collier; RISE Research Institutes of Sweden, Division of Bioeconomy and Health, Perception and Design Unit, Stockholm, Sweden; email: elizabeth.collier@ri.se; 

SK, KLH, JM, and ESC were supported by the RISE competence platform Centre for Categorical Based Measurements. KLH and ESC were supported by FORMAS - Research Council for Environment, Agricultural Sciences and Spatial Planning, grant number 2018–01867. JAW was supported by the National Institutes of Diabetes and Digestive and Kidney Diseases of the National Institutes of Health (NIH), grant number K01DK119166.

Available from: 2023-05-11 Created: 2023-05-11 Last updated: 2023-10-31Bibliographically approved
Melin, J., Möllerberg, M.-L., Svensson, H., Johansson, M., Korsell, N., Karlsson, S., . . . Pendrill, L. (2023). En hållbar organisering för mätkvalitetssäkring av kategoribaserade mätningar: Med uppdrag att samordna och säkerställa tillförlitliga och jämförbara mätningar av upplevelser, känslor, beteenden och förmågor.
Open this publication in new window or tab >>En hållbar organisering för mätkvalitetssäkring av kategoribaserade mätningar: Med uppdrag att samordna och säkerställa tillförlitliga och jämförbara mätningar av upplevelser, känslor, beteenden och förmågor
Show others...
2023 (Swedish)Report (Other academic)
Abstract [sv]

Varför?

Samhällets behov av kunskap om upplevelser, känslor, beteenden och förmågor ökar. Det är viktigt att veta hur personer och samhället mår eller hur en produkt eller tjänst upplevs samt att kunna jämföra hur detta förändras över tid och mellan olika områden, för att exempelvis fatta beslut om prioriteringar, insatser och effekter. För att mätningar av upplevelser, känslor, beteenden och förmågor ska vara användbara och ge tillförlitliga underlag krävs kvalitetssäkrad mätteknik för s.k. kategoribaserade mätningar. Det är alltså nödvändigt att grundläggande mättekniska principer tillämpas, vilket ofta inte är fallet i dag inom detta område. För de fysikaliska storheterna (längd, massa, tid etc.) finns sedan länge en internationellt etablerad mätkvalitetsinfrastruktur. I Sverige är det huvudsakligen RISE som Nationellt Metrologiskt Institut som genom sina riksmätplatser ansvarar för att säkerställa tillgång till kvalitetssäkrade och spårbara mätningar för samhället. Motsvarande mätkvalitetsinfrastruktur saknas dock för kategoribaserade mätningar.

Vad?

RISE arbetar sedan flera år för att utveckla metoder och arbetssätt för mätkvalitetssäkring av upplevelser, känslor, beteenden och förmågor. Genom dialoger med aktörer på olika nivåer, bland annat inom hälso- och sjukvården och akademin, som pågått under flera års tid har det framkommit att det finns ett stort behov av stöd för denna utveckling. RISE har därför tagit fram ett första utkast för en möjlig hållbar organisering för mätkvalitetssäkring av kategoribaserade mätningar. Ett nationellt centrum för mätkvalitetssäkring av kategoribaserade mätningar skulle ha i uppdrag att samordna och säkerställa tillförlitliga och jämförbara mätningar av upplevelser, känslor, beteenden och förmågor. Ett sådant infrastrukturellt stöd ska tillgängliggöra metodiker för att möjliggöra mätkvalitetssäkring för kategoribaserade mätningar. Organiseringen ska möta samhällets behov av stöd genom att erbjuda tjänster baserade på internationellt vedertagna mättekniska principer och vetenskapliga metoder samt ha en neutral och oberoende roll.

Hur?

Det finns en stor ödmjukhet kring att det är en lång process att etablera en organisering för kategoribaserade mätningar och att det behöver ske genom en dynamisk och iterativ utveckling i samskapande med berörda aktörer. Vi ser fram emot att fortsätta utveckla tankar och revidera förslaget i dialog under kommande år. Det är också viktigt att påbörja en dialog tillsammans med relevanta aktörer om hur implementeringen av organiseringen kan ske i framtiden.

Publisher
p. 13
Series
RISE Rapport ; 2023:7
National Category
Natural Sciences
Identifiers
urn:nbn:se:ri:diva-64023 (URN)978-91-89757-50-9 (ISBN)
Available from: 2023-02-16 Created: 2023-02-16 Last updated: 2023-11-27Bibliographically approved
Melin, J., Fridberg, H., Ekvall Hansson, E., Smedberg, D. & Pendrill, L. (2023). Exploring a New Application of Construct Specification Equations (CSEs) and Entropy: A Pilot Study with Balance Measurements. Entropy, 25(6), Article ID 940.
Open this publication in new window or tab >>Exploring a New Application of Construct Specification Equations (CSEs) and Entropy: A Pilot Study with Balance Measurements
Show others...
2023 (English)In: Entropy, E-ISSN 1099-4300, Vol. 25, no 6, article id 940Article in journal (Refereed) Published
Abstract [en]

Both construct specification equations (CSEs) and entropy can be used to provide a specific, causal, and rigorously mathematical conceptualization of item attributes in order to provide fit-for-purpose measurements of person abilities. This has been previously demonstrated for memory measurements. It can also be reasonably expected to be applicable to other kinds of measures of human abilities and task difficulty in health care, but further exploration is needed about how to incorporate qualitative explanatory variables in the CSE formulation. In this paper we report two case studies exploring the possibilities of advancing CSE and entropy to include human functional balance measurements. In case study I, physiotherapists have formulated a CSE for balance task difficulty by principal component regression of empirical balance task difficulty values from Berg’s Balance Scale transformed using the Rasch model. In case study II, four balance tasks of increasing difficulty due to diminishing bases of support and vision were briefly investigated in relation to entropy as a measure of the amount of information and order as well as physical thermodynamics. The pilot study has explored both methodological and conceptual possibilities and concerns to be considered in further work. The results should not be considered as fully comprehensive or absolute, but rather open up for further discussion and investigations to advance measurements of person balance ability in clinical practice, research, and trials. © 2023 by the authors.

Place, publisher, year, edition, pages
MDPI, 2023
Keywords
metrology, Rasch model, task difficulty, validation
National Category
Engineering and Technology
Identifiers
urn:nbn:se:ri:diva-65672 (URN)10.3390/e25060940 (DOI)2-s2.0-85163886265 (Scopus ID)
Note

Correspondence Address: J. Melin; Measurement Science and Technology Unit, Division of Safety and Transport, RISE Research Institutes of Sweden, Gothenburg, 41258, Sweden.  

This research received no external funding.

Available from: 2023-08-10 Created: 2023-08-10 Last updated: 2023-08-10Bibliographically approved
Melin, J., Göschel, L., Hagell, P., Westergren, A., Flöel, A. & Pendrill, L. (2023). Forward and Backward Recalling Sequences in Spatial and Verbal Memory Tasks: What Do We Measure?. Entropy, 25(5), Article ID 813.
Open this publication in new window or tab >>Forward and Backward Recalling Sequences in Spatial and Verbal Memory Tasks: What Do We Measure?
Show others...
2023 (English)In: Entropy, E-ISSN 1099-4300, Vol. 25, no 5, article id 813Article in journal (Refereed) Published
Abstract [en]

There are different views in the literature about the number and inter-relationships of cognitive domains (such as memory and executive function) and a lack of understanding of the cognitive processes underlying these domains. In previous publications, we demonstrated a methodology for formulating and testing cognitive constructs for visuo-spatial and verbal recall tasks, particularly for working memory task difficulty where entropy is found to play a major role. In the present paper, we applied those insights to a new set of such memory tasks, namely, backward recalling block tapping and digit sequences. Once again, we saw clear and strong entropy-based construct specification equations (CSEs) for task difficulty. In fact, the entropy contributions in the CSEs for the different tasks were of similar magnitudes (within the measurement uncertainties), which may indicate a shared factor in what is being measured with both forward and backward sequences, as well as visuo-spatial and verbal memory recalling tasks more generally. On the other hand, the analyses of dimensionality and the larger measurement uncertainties in the CSEs for the backward sequences suggest that caution is needed when attempting to unify a single unidimensional construct based on forward and backward sequences with visuo-spatial and verbal memory tasks.

Place, publisher, year, edition, pages
MDPI, 2023
Keywords
cognition, cognitive neuroscience, metrology, neurodegenerative diseases, neuropsychological assessments, neuropsychology, Rasch, verbal memory, visuo-spatial memory
National Category
Neurology
Identifiers
urn:nbn:se:ri:diva-64944 (URN)10.3390/e25050813 (DOI)2-s2.0-85160526293 (Scopus ID)
Note

Correspondence Address: Melin, J.; Research Institutes of Sweden (RISE), Sweden; email: jeanette.melin@ri.se; Funding details: Horizon 2020 Framework Programme, H2020; Funding details: European Metrology Programme for Innovation and Research, EMPIR; Funding text 1: This project (18HLT09 NeuroMET2) has received funding from the EMPIR programme co-financed by the Participating States and from the European Union’s Horizon 2020 research and innovation programme.

Available from: 2023-06-12 Created: 2023-06-12 Last updated: 2023-06-12Bibliographically approved
Melin, J., Cano, S. J., Flöel, A., Göschel, L. & Pendrill, L. (2023). Metrological advancements in cognitive measurement: A worked example with the NeuroMET memory metric providing more reliability and efficiency. Measurement: Sensors, 25, Article ID 100658.
Open this publication in new window or tab >>Metrological advancements in cognitive measurement: A worked example with the NeuroMET memory metric providing more reliability and efficiency
Show others...
2023 (English)In: Measurement: Sensors, ISSN 2665-9174, Vol. 25, article id 100658Article in journal (Refereed) Published
Abstract [en]

Better metrics of cognition can be formed by carefully combining selected items from legacy short-term memory tests so as to enhance coherence in item design while not jeopardizing validity. In this paper, we report on how Rasch Measurement Theory and Construct specification equations (CSE) have been brought together when composing the NeuroMET Memory Metric (NMM). The NMM is guided by: i) entropy-based equivalence criteria; ii) a comprehensive understanding of the construct purported to be measured; and iii) how a collection of items works together. CSEs play a major role in ensuring the metrological legitimacy of the NMM in a way analogous to certified reference materials in more established areas of metrology. The resulting NMM for short-term memory recall has up to a five-fold reduction in measurement uncertainties for memory ability compared with an individual legacy test, and the entropy-based CSEs should enable more efficient and valid assessment. © 2022 The Authors

Place, publisher, year, edition, pages
Elsevier Ltd, 2023
Keywords
Cognition, Entropy, Metrology, Person ability, Rasch, Task difficulty
National Category
Engineering and Technology
Identifiers
urn:nbn:se:ri:diva-62564 (URN)10.1016/j.measen.2022.100658 (DOI)2-s2.0-85145294160 (Scopus ID)
Note

Funding details: European Metrology Programme for Innovation and Research, EMPIR; Funding details: Horizon 2020; Funding text 1: This project 18HLT09 NeuroMET2 has received funding from the EMPIR programme co-financed by the Participating States and from the European Union's Horizon 2020 research and innovation programme .

Available from: 2023-01-23 Created: 2023-01-23 Last updated: 2023-05-25Bibliographically approved
Pendrill, L., Melin, J., Stavelin, A. & Nordin, G. (2023). Modernising Receiver Operating Characteristic (ROC) Curves †. Algorithms, 16(5), Article ID 253.
Open this publication in new window or tab >>Modernising Receiver Operating Characteristic (ROC) Curves †
2023 (English)In: Algorithms, E-ISSN 1999-4893, Vol. 16, no 5, article id 253Article in journal (Refereed) Published
Abstract [en]

The justification for making a measurement can be sought in asking what decisions are based on measurement, such as in assessing the compliance of a quality characteristic of an entity in relation to a specification limit, SL. The relative performance of testing devices and classification algorithms used in assessing compliance is often evaluated using the venerable and ever popular receiver operating characteristic (ROC). However, the ROC tool has potentially all the limitations of classic test theory (CTT) such as the non-linearity, effects of ordinality and confounding task difficulty and instrument ability. These limitations, inherent and often unacknowledged when using the ROC tool, are tackled here for the first time with a modernised approach combining measurement system analysis (MSA) and item response theory (IRT), using data from pregnancy testing as an example. The new method of assessing device ability from separate Rasch IRT regressions for each axis of ROC curves is found to perform significantly better, with correlation coefficients with traditional area-under-curve metrics of at least 0.92 which exceeds that of linearised ROC plots, such as Linacre’s, and is recommended to replace other approaches for device assessment. The resulting improved measurement quality of each ROC curve achieved with this original approach should enable more reliable decision-making in conformity assessment in many scenarios, including machine learning, where its use as a metric for assessing classification algorithms has become almost indispensable.

Place, publisher, year, edition, pages
MDPI, 2023
Keywords
decision risks, measurement system analysis, ordinality, rating ability, receiver operating characteristic, Machine learning, Risk assessment, Systems analysis, Classification algorithm, Decision risk, Item response theory, Measurement systems analysis, Quality characteristic, Rating abilities, Receiver operating characteristic curves, Receiver operating characteristics, Specification limit, Decision making
National Category
Civil Engineering
Identifiers
urn:nbn:se:ri:diva-64945 (URN)10.3390/a16050253 (DOI)2-s2.0-85160212265 (Scopus ID)
Note

Correspondence Address: Pendrill, L.R.; RISE Measurement Science and Technology, Sweden; email: leslie.pendrill@ri.se; Funding details: Horizon 2020 Framework Programme, H2020; Funding details: European Metrology Programme for Innovation and Research, EMPIR; Funding text 1: Part of the work reported has also been part of the 15HLT04 NeuroMET and 18HLT09 NeuroMET2 projects which received funding (2016–2022) from the EMPIR programme co-financed by the Participating States and from the European Union’s Horizon 2020 research and innovation programme. Hence, we would like to express our great appreciation to collaborators and partners for our valuable and constructive work together.

Available from: 2023-06-12 Created: 2023-06-12 Last updated: 2023-06-12Bibliographically approved
Melin, J., Cano, S., Göschel, L., Flöel, A. & Pendrill, L. (2023). NeuroMET Memory Metric: Improving accuracy and comparability with crosswalks. Alzheimer’s & Dementia: Translational Research & Clinical Interventions, 19(S4), Article ID e063924.
Open this publication in new window or tab >>NeuroMET Memory Metric: Improving accuracy and comparability with crosswalks
Show others...
2023 (English)In: Alzheimer’s & Dementia: Translational Research & Clinical Interventions, E-ISSN 2352-8737, Vol. 19, no S4, article id e063924Article in journal (Refereed) Published
Abstract [en]

Background: The ability to measure, track over time, and compare memory ability for people with neurodegeneration is important. However, currently, full comparability of memory test data is limited by a lack of quality assurance of memory measurements. At AAIC 2021, we presented a preliminary item bank to assess memory, composed by selecting items from legacy tests according to metrological principles through use of the Rasch model and with item equivalence based on entropy. Method: Here, we demonstrate direct comparability of measurements generated from different tests, with the new NeuroMET Memory Metric comprising 87 selected items for task difficulty from: the Corsi Block Test, Digit Span Test, Rey’s Auditory Verbal Learning Test, Word Learning List from the CERAD test battery and the Mini Mental State Examination. Data were collected from the European EMPIR NeuroMET and the SmartAge studies recruited at Charité Hospital (Healthy controls n = 92; Subjective cognitive decline n = 160; Mild Cognitive Impairment n = 50; and Alzheimer’s Disease n = 58; age range 55-87). Results: The Rasch analysis showed well-targeted items for all participants’ abilities; good fit to the measurement model, with 83 items (95%) having fit residuals within the expected range and satisfactory unidimensionality, and item reliability of 0.96. The full item bank comprising 87 short-term memory items gave a person reliability of 0.85. Subsequently, a conversion table was created linking the raw scores from the legacy tests to the common NeuroMET Memory Metric and to individual legacy tests. Conclusion: Legacy memory tests have previously proven useful in clinical practice and research, and will continue to be used, but have to date been metrologically limited. The provided conversion table, linking these legacy memory tests to a metrologically assured scale, viz., the NeuroMET memory metric, remedies this deficiency. The NeuroMET memory metric will be included in the first ever prototype of a metrological validated app used to deliver memory tests. Clinicians and researchers will be able to select sets of items to produce data, via a scoring algorithm for transforming patient responses to measures, in a common frame of reference.

National Category
Neurosciences
Identifiers
urn:nbn:se:ri:diva-66215 (URN)10.1002/alz.063924 (DOI)
Note

This project (EMPIR 18HLT9 NeuroMET2) has received funding from the EMPIR programme co-financed by the Participating States and from the European Union’s Horizon 2020 research and innovation programme

Available from: 2023-09-07 Created: 2023-09-07 Last updated: 2023-09-07Bibliographically approved
Melin, J., Axwalter, E., Åhrén, G., Sunnerhagen, K., Lundgren-Nilsson, Å. & Wangdell, J. (2023). Research priorities to enhance life for people with spinal cord injury: a Swedish priority setting partnership. Spinal Cord
Open this publication in new window or tab >>Research priorities to enhance life for people with spinal cord injury: a Swedish priority setting partnership
Show others...
2023 (English)In: Spinal Cord, ISSN 1362-4393, E-ISSN 1476-5624Article in journal (Refereed) Epub ahead of print
Abstract [en]

Study design: Mixed-method consensus development project. Objective: To identify the top ten research priorities for spinal cord injury (SCI). Setting: Nationwide in Sweden in 2021–22. Methods: The PSP process proposed by the James Lind Alliance was used. It comprises two main phases: question identification and priority selection. People living with SCI, relatives of people with SCI as well as health professionals and personal care assistants working with people with SCI were included. Results: In the first phase, 242 respondents provided 431 inputs addressing potentially unanswered questions. Of these, 128 were beyond the scope of this study. The remaining 303 were merged to formulate 57 questions. The literature review found one question answered, so 56 questions proceeded to the prioritisation. In the second phase, the interim prioritisation survey, 276 respondents ranked the 56 questions. The top 24 questions then proceeded to the final prioritisation workshop, at which 23 participants agreed on the top ten priorities. Conclusions: This paper reveals issues that people living with SCI, relatives of people with SCI as well as health professionals and personal care assistants working with people with SCI find difficult to get answered. The top-priority questions for people living with SCI in Sweden concern specialist SCI care and rehabilitation, followed by a number of questions addressing physical health. Other topics, from the 56 key questions include Mental health, Ageing with SCI, Community support and personal care assistance, and Body functions. This result can guide researchers to design appropriate studies relevant to people with SCI. Sponsorship: The project was funded by the Gothenburg Competence Centre for Spinal Cord Injury and the Swedish Association for Survivors of Accident and Injury (RTP). [Figure not available: see fulltext.]. © 2023, The Author(s).

Place, publisher, year, edition, pages
Springer Nature, 2023
National Category
Health Sciences
Identifiers
urn:nbn:se:ri:diva-65712 (URN)10.1038/s41393-023-00913-2 (DOI)2-s2.0-85165238801 (Scopus ID)
Available from: 2023-08-09 Created: 2023-08-09 Last updated: 2023-08-09Bibliographically approved
Melin, J., Fors, A., Jakobsson, S., Krabbe, D. & Björkman, I. (2023). Self-Efficacy to Manage Chronic Disease (SEMCD) scale: translation and evaluation of measurement properties for a swedish version. Archives of Public Health, 81(1), Article ID 2.
Open this publication in new window or tab >>Self-Efficacy to Manage Chronic Disease (SEMCD) scale: translation and evaluation of measurement properties for a swedish version
Show others...
2023 (English)In: Archives of Public Health, ISSN 0778-7367, E-ISSN 2049-3258, Vol. 81, no 1, article id 2Article in journal (Refereed) Published
Abstract [en]

Background: Reinforcing self-efficacy in patients is important in person-centered care; therefore, reliable and valid measures of a person’s self-efficacy is of clinical relevance. A questionnaire suitable for self-efficacy and patient engagement that is not limited to a particular condition is the Self-efficacy to Manage Chronic Disease (SEMCD). This study aims to evaluate the measurement properties of a Swedish translation of the SEMCD with a Rasch analysis. Methods: The translation and cultural adaptation of the SEMCD was performed according to the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) recommendations. Self-reported data was collected from two cohorts: patients with pituitary tumors (n = 86) and patients on sick leave due to common mental disorders (n = 209). Measurement properties were evaluated with a Rasch analysis in RUMM2030. Results: The original six-item SEMCD did not fit to a unidimensional scale. Two items, item 5 and item 6, deviated both statistically and conceptually and were removed. A four-item solution, the SEMCD-4 with collapsed thresholds for mid-range response options, showed good targeting and unidimensionality, no item misfit, and a reliability of 0.83. Conclusion: In a Swedish context with a mix of patients with pituitary tumors or common mental disorders, SEMCD-4 showed satisfactory measurement properties. Thus, SEMCD-4 could be used to identify patient self-efficacy in long-term illnesses. This knowledge about patient self-efficacy may be of importance to tailor person-centered support based on each patient´s resources, needs and goals. © 2023, The Author(s).

Place, publisher, year, edition, pages
BioMed Central Ltd, 2023
Keywords
Rasch analysis, Self-efficacy
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:ri:diva-62556 (URN)10.1186/s13690-022-01022-x (DOI)2-s2.0-85145556840 (Scopus ID)
Note

Funding details: ALFGBG-719531; Funding details: Västra Götalandsregionen; Funding details: Sahlgrenska Universitetssjukhuset, SU; Funding details: Göteborgs Universitet; Funding details: Forskningsrådet om Hälsa, Arbetsliv och Välfärd, FORTE, 2016–07418, 2017–00557, 2019–01726, ALFGBG-772191, ALFGBG-932659; Funding details: Centrum fÖr Personcentrerad Vård, GPCC; Funding text 1: This research would not have been possible without patient engagement and the extensive data collection within the two different interventional studies. We acknowledge the patients with pituitary tumors that participated in the study and Gudmundur Johannsson and Ann-Charlotte Olofsson from the Department of Endocrinology and Tobias Hallén and Thomas Skoglund from the Department of Neurosurgery at Sahlgrenska University Hospital responsible for the study including patients with pituitary tumors. Furthermore, we gratefully acknowledge the contributions of patients, the participating primary health care centers, managers and health care professionals to the study including patients on sick leave due to CMD.; Funding text 2: Open access funding provided by University of Gothenburg. The PT-study was supported by grants from the Swedish state under agreement between the Swedish government and the county councils, the ALF-agreement (ALFGBG-719531), and The Healthcare Board, Västra Götaland Region in Sweden. The CMD project was supported by the Swedish Research Council for Health, Working Life and Welfare (2016–07418, 2017–00557, and 2019–01726), and was financed by grants from the Swedish state under the agreement between the Swedish government and the country councils, the ALF agreement (ALFGBG-772191 and ALFGBG-932659). This work was also supported by The University of Gothenburg Centre for Person-centred Care (GPCC), Sweden. GPCC is funded by the Swedish Government’s grant for Strategic Research Areas (Care Sciences) and the University of Gothenburg, Sweden.

Available from: 2023-01-23 Created: 2023-01-23 Last updated: 2023-05-22Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-3700-3921

Search in DiVA

Show all publications